When diagnosed with a fatal disease, there are 2 things that are absolutely essential:
1. Learn absolutely averything you can about the disease. Causes, symptoms, treatments, survivor odds, clinical trials - everything, everything, everything. Let google be your guide and follow it around. The more you know, the more you can help control you own destiny.
2.Understand that you CANNOT control your own destiny. When your disease rears its head, your body follows, your doctors make decisions that may not be the decision you would make, and you follow because it will most likely give you the best chance to survive the incident.
Given the lack of any western medicine that had a real effect on the disease at that time, I decided to check out alternative eastern medicine. Yes, I did noni, yes I did graviola, I scoured around trying to find isatis root, but my approach was helter-skelter. I was put in touch with a clinical nutrionist. We talked for a long time and she stressed several things: A positive attitude, a buildup of my immune system so that my own body can help fight the disease - and yes, your body can help fight the disease, ridding my body of poisons thru good nutrition (organic) and a goal of keeping my blood values stable, which they were. Slowly, she started adding things to my protocol - green powders, red powders, quercetin, resveratrol, green tea extract, and so on. I bought a juicer to make my own wheat grass juice. Have you ever had wheat grass juice?? NASTY. I gave that one up. I changed my diet, and while not 100% organic, where I have a choice, I always choose organic.
I informed my doctor at Kaiser (whom I will now start callin Dr K) of my new protocol. He warned me to be careful, that alot of these people are looking to make a fast buck. Not the case here, since all she tells me is what to get.
Since being diagnosed in September, Dr K has set up a weekly blood test to monitor my blood values. I have been very very stable with no major fluctuations of any values. His course of treatment at that time is watchful waiting. Since my own personality is one of "action", alternative medicine allows me to "control" my own destiny. Yeah right. But it does give me a sense of action on my part and allows me to feel that I am fighting back. Is it contributing to my stable values? Don't know, but at that time I didn't want to stop. Today, I'm still stable.
My next backround post will introduce you to the gold standard- UCSF Medical Center
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2 comments:
I don't know how to "blog". I hope I can figure it out. I've been diagnosed with CMML a few months ago. I guess I've had it for a while since I've had all the signs for over a year. Does this mean I have less than a year to live???? I've been to Sloan and Mayo. No one can tell me anything. I guess there's no real treatment. How are you doing?
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